Davey Gibbs Lifts Gabi and Race Car Drivers Join to Save Girl fromNiemann-Pick Type C |
Gabrielle LaVerde |
Who is Gabrielle LaVerde?
Gabrielle LaVerde is a delightful and adored 7 year old little girl who has been diagnosed with a fatal and rare disease, called Niemann-Pick Type C. The disease is considered an orphan disease since there have only been 500 known cases worldwide. The disease itself renders its victims with Alzheimer’s-like symptoms—victims move backward in time and forget how to perform basic functions, such as talking, walking, eating, chewing, swallowing, and breathing.
We first learned of Gabrielle’s diagnosis in October, 2007. Gabrielle’s elementary school classmates were horrified to learn that her disease was fatal, and that there was no cure, no miracle drug, or no surgery that could save her. Her classmates quickly rallied support, not only from their parents, but from the entire Deltona community to help pay for experimental treatments. The outpouring amount of encouragement, support, and prayers that the LaVerde family has received has been phenomenal. The elementary school students raised over $10,800 in less than 3 months.
The purpose of this website is to:
· Increase awareness of the disease known as Niemann-Pick Type C · Create awareness about Gabrielle LaVerde’s condition · Share with supporters recent and upcoming events to help Gabrielle. · Special Thanks to Lloyd Marcus, Deltona Lakes Elementary School, the City of Deltona, and the citizens of Deltona, for your ongoing support.
Website & YouTube Videos designed & donated by www.GiseleVeilleux.com |
Davey Gibbs Rocks Gabi!Video & photos by Gisele Veilleux |
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Race car driver and Bench Press World Record holder Davey Gibbs is committed to raising funds to save the life of seven year old Gabrielle Laverde. Gabrielle suffers with a rare fatal disease called Niemann-Pick Type C (Early Childhood Alzheimer's). Life expectancy after diagnosis is 6-10 years.
Power Lift for Gabi & Savin' Gabi Race
Power Lift for Gabi: Davey Gibbs will attempt an AMAZING FEAT of bench pressing 1000lbs for Gabi. Sponsors pledge to donate $3-$10 per pound to Gabi's medical treatments for every pound Davey lifts. Community organizations and businesses are encouraged to sponsor Davey's lift for Gabi; 50 cents, a dollar or whatever you can afford per pound helps and is greatly appreciated.
Savin' Gabi Race: The Savin' Gabi Race in which the winning purse goes to Gabi will follow immediately after Davey's Bench Press Exhibition.
Special Feature: Deltona Arts Recording Studios will debut their song “Savin' Gabi” performed LIVE by 40 members of the Central Florida music community. “Savin' Gabi” was written by Lloyd Marcus & Scott Evans. Produced by Frank Starchak & Adrian Sutton. Lead vocals by Lloyd Marcus. |
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Photos by Gisele Veilleux |