Gabrielle LaVerde

Gabrielle Laverde, a delightful and adored first grade little girl, has been recently diagnosed with Niemann-Pick Type C disease. Only 300 cases of this terminal disease is known in the U.S., and only 500 worldwide.

 

Without state-of-the-art experimental treatment overseas, Gabrielle doesn't stand a chance and time is running out.

 

Help Gabrielle and her family fund a trip to give Gabrielle a chance to fight this terrible disease.

 

Please donate to Gabrielle’s trip.  Gabrielle is my only child, please help me save her life.

 

Danielle

Gabrielle’s Mom

 

Join Danielle’s Blog, A Mother’s Diary on Niemann-Pick  http://gabriellelaverde.blogspot.com

 

For more information, email GabrielleLaVerde

Double-Click the Play Button to View Video

Fighting for Gabrielle LaVerde

This rare and deadly disease that attacks young children between the ages of 6—10 years of age.  There is no known cure for Niemann-Pick Type C, and once diagnosed, children die within a very short time.  Diagnosis of Niemann-Pick itself, in some cases, takes years, as was the case for little Gabrielle LaVerde.  Here is a list of certain key search words used when trying to identify this rare and deadly disease that attacks young children between the ages of 6—10 years of age.  Niemann-Pick Disorder, Niemann-Pick Disease, Niemann-Pick Type C, Neimann-Pick Disorder, Neimann-Pick Disease, Neimann-Pick Type C, NP-C, Gabrielle LaVerde,  Niemann-Pick is also known as childhood Alzheimer’s disease.  Gabrielle’s Gift, cholesterol, metabolism, genetic, metabolic, lipids, neurological, life expectancy,  speech, gait, developmental, delay, cerebral palsy, occupational therapy, behavioral, neurologist, pediatrician, geneticist, EEG, MRI, CT scan, seizure, medication, Orlando, Florida, Neuro Muscularist, Kennedy-Krieger, Johns Hopkins, Movement, Disorder, Neurology, Baltimore, Degenerative, Disease, Brandon, skin biopsy, stem cell, stem cell research, regenerative medicine, cytotherapy, amniotic stem cell, fatal, terminal, Ara Parseghian, Addi Hempel, Cassi Hempel, Dana’s Angel Research Trust, Jessica Leoni, Kevin Eadie, Jacob DeMeis-Dullea, Luke Liegghio, Race for Adam, Ty Quandt, Ashkenazi, Early Childhood Alzheimer’s, Fox 35 Orlando

 

 

 

Website & Youtube Videos donated by  http://www.GiseleVeilleux.com    Email Web Administrator

What do we Need?

 

The kids at DLE have shown us that a Big Give needs to be creative!  Some have donated their frequent flyer miles, hotel  points, you name it!  Anything to help Gabrielle get the treatment she needs.

 

We are hoping that we can find a Printing company to help us print flyers, a T-shirt company to make t-shirts for our supporters and volunteers to help spread the world, and a company that will make simple bumper stickers for our community. 

 

We also need more photos or video of the fund raising evening so we can include them in videos and on this webpage of that spectacular evening!  Please email GiseleVeilleux@earthlink.net if you have any photos you’d like to share.