Poems for Gabi

This rare and deadly disease that attacks young children between the ages of 6—10 years of age. There is no known cure for Niemann-Pick Type C, and once diagnosed, children die within a very short time. Diagnosis of Niemann-Pick itself, in some cases, takes years, as was the case for little Gabrielle LaVerde. Here is a list of certain key search words used when trying to identify this rare and deadly disease that attacks young children between the ages of 6—10 years of age. Niemann-Pick Disorder, Niemann-Pick Disease, Niemann-Pick Type C, Neimann-Pick Disorder, Neimann-Pick Disease, Neimann-Pick Type C, NP-C, Gabrielle LaVerde, Niemann-Pick is also known as childhood Alzheimer’s disease. Gabrielle’s Gift, cholesterol, metabolism, genetic, metabolic, lipids, neurological, life expectancy, speech, gait, developmental, delay, cerebral palsy, occupational therapy, behavioral, neurologist, pediatrician, geneticist, EEG, MRI, CT scan, seizure, medication, Orlando, Florida, Neuro Muscularist, Kennedy-Krieger, Johns Hopkins, Movement, Disorder, Neurology, Baltimore, Degenerative, Disease, Brandon, skin biopsy, stem cell, stem cell research, regenerative medicine, cytotherapy, amniotic stem cell, fatal, terminal, Ara Parseghian, Addi Hempel, Cassi Hempel, Dana’s Angel Research Trust, Jessica Leoni, Kevin Eadie, Jacob DeMeis-Dullea, Luke Liegghio, Race for Adam, Ty Quandt, Early Childhood Alzheimer’s

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Save Gabrielle LaVerde

From Niemann-Pick Type C

Text Box: HOPE

Hope comes in many colors, many reasons It can come as a tiny spark of light in darkness It can come softly as the falling rain It can come when we are not even aware

Hope is a necessity of life for each of us It is what we hold onto when the rope breaks It is the cry of a sick child on a dark night It
is a mothers prayer for her family

Hope can be fragile or strong and unmoving It can be as a raging stream or a gentle lake It can float on the delicate wings of a butterfly It can lodge within a heart and warm the soul

Hope, it is what keeps us going, keeps us believing Life would not be bearable without it It is the look of trust in a child’s eyes Hope,
is the heart of us all.

For Gabrielle, keeping hope alive.

Juanita Hawkins

A Prayer For Gabrielle

Oh Angels of the Lord
Watch over this child to night
Keep her safe from harm
Till the World puts this to right
Gabrielle's story, a thousand hearts touched
Angels whisper to her, the World cares so much
Bring beauty to her dreams
Your hands on her silken hair
Let her wake tomorrow
People are rushing there
Softly, gently let her lay
Wings of Angels stay
Teach us through this child’s eyes
To bring the promised way
Amen

With all our Love to you

from Carol and Robert, New Mexico

What do we Need?

The kids at DLE have shown us that a Big Give needs to be creative! Some have donated their frequent flyer miles, hotel points, you name it! Anything to help Gabrielle get the treatment she needs.

We are hoping that we can find a Printing company to help us print flyers, a T-shirt company to make t-shirts for our supporters and volunteers to help spread the world, and a company that will make simple bumper stickers for our community.

We also need more photos or video of the fund raising evening so we can include them in videos and on this webpage of that spectacular evening! Please email GiseleVeilleux@earthlink.net if you have any photos you’d like to share.