Flyers to Start

Your Big Give for Gabrielle Laverde

This rare and deadly disease that attacks young children between the ages of 6—10 years of age.  There is no known cure for Niemann-Pick Type C, and once diagnosed, children die within a very short time.  Diagnosis of Niemann-Pick itself, in some cases, takes years, as was the case for little Gabrielle LaVerde.  Here is a list of certain key search words used when trying to identify this rare and deadly disease that attacks young children between the ages of 6—10 years of age.  Niemann-Pick Disorder, Niemann-Pick Disease, Niemann-Pick Type C, Neimann-Pick Disorder, Neimann-Pick Disease, Neimann-Pick Type C, NP-C, Gabrielle LaVerde,  Niemann-Pick is also known as childhood Alzheimer’s disease.  Gabrielle’s Gift, cholesterol, metabolism, genetic, metabolic, lipids, neurological, life expectancy,  speech, gait, developmental, delay, cerebral palsy, occupational therapy, behavioral, neurologist, pediatrician, geneticist, EEG, MRI, CT scan, seizure, medication, Orlando, Florida, Neuro Muscularist, Kennedy-Krieger, Johns Hopkins, Movement, Disorder, Neurology, Baltimore, Degenerative, Disease, Brandon, skin biopsy, stem cell, stem cell research, regenerative medicine, cytotherapy, amniotic stem cell, fatal, terminal, Ara Parseghian, Addi Hempel, Cassi Hempel, Dana’s Angel Research Trust, Jessica Leoni, Kevin Eadie, Jacob DeMeis-Dullea, Luke Liegghio, Race for Adam, Ty Quandt, fund raising, yard sale, bake sale, car wash,  charity event, donations. Early Childhood Alzheimer’s

 

 

 

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Simply Select  the Flyer you want to use.  Flyers are 2 up on a page.  Select “Open” the file and use Microsoft Word to enter your group’s name, event date, and event location before printing.

 

Email us if you would like a Flyer designed specifically for your organization.

Download Microsoft Word Event Flyer  (2 up on page)

Information Page

Bake Sale

Car Wash

Donation Jar

Yard Sale

Big Give Event

 

For more information, email GabrielleLaVerde

Save Gabrielle LaVerde

From Niemann-Pick Type C

What do we Need?

 

The kids at DLE have shown us that a Big Give needs to be creative!  Some have donated their frequent flyer miles, hotel  points, you name it!  Anything to help Gabrielle get the treatment she needs.

 

We are hoping that we can find a Printing company to help us print flyers, a T-shirt company to make t-shirts for our supporters and volunteers to help spread the world, and a company that will make simple bumper stickers for our community. 

 

We also need more photos or video of the fund raising evening so we can include them in videos and on this webpage of that spectacular evening!  Please email GiseleVeilleux@earthlink.net if you have any photos you’d like to share.