Press Releases |
Gabrielle LaVerde |
Press ReleaseCentral Florida PreparesBig Give to Save Dying Child
DELTONA, FL/May 15, 2008 Immediate Release/ Contact: Lloyd Marcus 954-934-9588
After a local elementary school raised over $10,500 in just a few months for their classmate, Central Florida is preparing to join them in the fight to save a 6 year old student, Gabrielle LaVerde. Tucked away, in-between Daytona Beach and Orlando, an elementary school, called Deltona Lakes Elementary, which consists of 1,005 students, worked non-stop in raising awareness and collecting donations for their fellow classmate. Their fund raising ideas were creative, yet simple, and were referred to as DLE’s Big Give.
DLE’s Big Give all started with the students standing in line at the front office every morning with their piggy banks, weekly allowances, and coin jars. Once the students had raised several thousand dollars, the students solicited the help of their parents and neighbors. What followed was bake sales, talent shows, a community yard sale, and a spaghetti dinner that had profound results.
The news of the elementary school’s Big Give and this rare and fatal disease got the attention of Fox 35 News. Click Here to see the interview that was aired May 10, 2008:
Gabrielle LaVerde, a 1st grader, who attends DLE, has been diagnosed with a rare fatal disease called Niemann-Pick Type C (Early Childhood Alzheimer's). Life expectancy after diagnosis is 6-10 years. Only 300 Americans have been diagnosed with this disease. Only 500 cases are known worldwide. Niemann-Pick Type C is a genetic metabolic disease that causes multiple neurological disorders.
Gabrielle's treatments run $9,000 per month. Her parents are planning to take her to Mexico for an experimental treatment. The treatment cost $19,000. Airfare, accommodations, car rental, food, and incidentals will cost approximately $5,000.
Friends of Gabrielle have asked Lloyd Marcus to help take the Big Give to the next level. Mr. Marcus is challenging Central Florida to come together as a family and rally around the LaVerde family and their adorable little girl. “Do your own creative Big Give for Gabrielle. Let's work together to SAVE GABRIELLE LAVERDE,” he said.
Please raise funds throughout the summer. Before school begins, the LaVerde family will be presented with a check from “Central Floridians for Gabrielle” at a press conference. Location and date TBA. Press conference will include recognition of major contributors, music, and celebration festivities.
National and Corporate Contributors are welcome to join this community effort.
Please mark your contribution: “Central Floridians for Gabrielle.”
Contribute to GABRIELLE'S TRUST ACCOUNT By paypal on Gabrielle’s Website or directly to Sun Trust Bank Attn: Jessica for Gabrielle LaVerde / 2602 Enterprise Road / Orange City, FL 32763 1-800-786-8787 or 386-775-8878
To Learn More about Gabrielle visit at: http://www.GabrielleLaVerde.com or email GabrielleLaVerde@earthlink.net
FOR INTERVIEW or contact information, contact Family Spokesperson: Gisele Veilleux 386-532-5237 or 407-256-5960 or GiseleVeilleux@earthlink.net
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Press ReleaseCentral Florida Unitesto Save Dying Child
DELTONA, FL/May 9, 2008 Immediate Release/ Contact: Lloyd Marcus 954-934-9588
It all began with 10-year old Ryan Bowling. His mom is extremely dedicated to rescuing animals. One day when she picked Ryan up from school, he asked her an important question. “Mom, isn't saving the life of a kid more important than saving the life of a dog?” Ryan's question caught Gisele, his mom, off guard, but she replied, “Of course!”
Ryan told her about Gabrielle LaVerde, a 1st grader who attends his school. Gabrielle has been diagnosed with a rare fatal disease called Niemann-Pick Type C (Early Childhood Alzheimer's). Life expectancy after diagnosis is 6-10 years. Only 300 Americans have been diagnosed with this disease. Only 500 cases are known world wide. Niemann-Pick Type C is a genetic metabolic disease and causes multiple neurological disorders. Ryan ordered his mom to “Get to work!”
Gabrielle's treatments run $9,000 per month. Her parents are planning to take her to Mexico for an experimental treatment. The treatment cost $19,000. Airfare, accommodations, car rental, food, and incidentals will cost approximately $5,000.
Fund raising for Gabrielle began with her schoolmates at Deltona Lakes Elementary School, Deltona, Florida. Through a talent show, spaghetti dinner, and numerous other fund raisers, DLE raised $10,500.
Friends of Gabrielle have asked me to help take the fund raising to the next level. I'm challenging Central Florida to come together as a family and rally around the LaVerde family and their adorable little girl. Do your own creative fund raiser for Gabrielle. Let's work together to SAVE GABRIELLE LAVERDE.
Please raise funds throughout the summer. Before school begins, the LaVerde family will be presented with a check from “Central Floridians for Gabrielle” at a press conference. Location & date TBA. Press conference will include recognition of major contributors, music, and celebration festivities.
Please mark your contribution: “Central Floridians for Gabrielle.”
Contribute to GABRIELLE'S TRUST ACCOUNT By paypal on Gabrielle’s Website or directly to Sun Trust Bank Attn: Jessica for Gabrielle LaVerde / 2602 Enterprise Road / Orange City, FL 32763 1-800-786-8787 or 386-775-8878
To Learn More about Gabrielle visit http://www.GabrielleLaVerde.com or email GabrielleLaVerde@earthlink.net
FOR INTERVIEW Contact Family Spokesperson: Gisele Veilleux 386-532-5237 / 407-256-5960 giseleveilleux@earthlink.net
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Press ReleaseCity’s Mayor Delivers ProclamationHonoring Deltona Lakes Elementary School
DELTONA, FL/May 21, 2008 Immediate Release/ Contact: Lloyd Marcus 954-934-9588
Lloyd Marcus, accompanied by parents and students of Deltona Lakes Elementary School, and their classmate Gabrielle LaVerde, requested community involvement at the Deltona City Commission Meeting on May 19th, 2008.
While addressing the Mayor and the City Commission, Marcus called upon all Deltona citizens to create their own fund raising efforts and join the students in saving Gabrielle LaVerde. Marcus called on every soccer team, every baseball team, every bar, and every church to do a fundraiser for Gabrielle.
Before the meeting adjourned, Commissioner Michele McFall-Conte suggested the city present a proclamation to the students that would create a Deltona Lakes Elementary School Day, to honor their fund raising efforts to save their dying schoolmate.
On May 20th, Mayor Dennis Mulder’s office contact the school to announce their desire to deliver a proclamation that would create an official DLE day. However, Mayor Mulder is also planning to throw the students a pizza party at DLE on May 27th. The pizza party, Mulder explained, would be a way for the City of Deltona to honor the students, and create awareness for the cause. Brighthouse Networks has agreed to sponsor the pizza, which will be provided and delivered by Little Ceasars.
The elementary school collected over $10,500 in just a few months for their fellow schoolmate, Gabrielle LaVerde. The elementary school, which consists of approximately 1,000 students, worked non-stop in raising awareness and collecting donations for Gabrielle. The school’s fundraising ideas are being referred to as DLE’s Big Give.
DLE’s Big Give all started with the students standing in line at the front office every morning with their piggy banks, weekly allowances, and coin jars. Once the students had raised several thousand dollars, the students solicited the help of their parents and neighbors. What followed were bake sales, talent shows, a community yard sale, and a spaghetti dinner that had profound results.
Gabrielle LaVerde, a 1st grader, who attends DLE, has been diagnosed with a rare and fatal disease called Niemann-Pick Type C (Early Childhood Alzheimer's). Life expectancy after diagnosis is 6-10 years. Only 300 Americans have been diagnosed with this disease. Only 500 cases are known worldwide. Niemann-Pick Type C is a genetic metabolic disease that causes multiple neurological disorders.
Gabrielle's treatments run $9,000 per month. Her parents are planning to take her to Mexico for an experimental treatment. The treatment cost $19,000. Airfare, accommodations, car rental, food, and incidentals will cost approximately $5,000.
Marcus hopes the community will hold fundraisers throughout the summer. Before school begins, the LaVerde family will be presented with a check from “Central Floridians for Gabrielle” at a press conference. Location and date TBA. Press conference will include recognition of major contributors, music, and celebration festivities. Marcus hopes that National and Corporate Contributors join this community effort.
Please mark your contribution: “Central Floridians for Gabrielle.” Contribute to GABRIELLE'S TRUST ACCOUNT By paypal on Gabrielle’s Website or directly to Sun Trust Bank Attn: Jessica for Gabrielle LaVerde / 2602 Enterprise Road / Orange City, FL 32763 or 1-800-786-8787 or 386-775-8878. To Learn More about Gabrielle visit at: http://www.GabrielleLaVerde.com or email GabrielleLaVerde@earthlink.net.
FOR INTERVIEW or contact information, contact Family Spokesperson: Gisele Veilleux 386-532-5237 or 407-256-5960 or GiseleVeilleux@earthlink.net
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Press ReleaseGABI’S BIG GIVEDying Child Benefit Concert6 Year Old Gabrielle LaVerde Fights Early Childhood Alzheimer’sKnown as Niemann-Pick Type C
Benefit Concert Saturday, August 23rd, 2008 7:00 PM – 9:30 PM Deltona City Hall Courtyard
Schools, clubs, organizations, neighborhoods, businesses, or restaurants get involved today!
Gabrielle LaVerde, a Second Grade Student at Deltona Lakes Elementary is fighting a deadly disease, known as Niemann-Pick Type C. Niemann-Pick Disease (NPD) is also known as childhood Alzheimer’s. Life expectancy for this disease is 10 – 15 years of age. Only 500 cases of this disease are known worldwide. Proceeds from this fundraising effort will go directly to a Trust Account to help pay for her treatments.
Contribute to GABRIELLE'S TRUST ACCOUNT By paypal on Gabrielle’s Website http://www.GabrielleLaVerde.com OR Directly to Sun Trust Bank, Attn: Jessica for Gabrielle LaVerde - 2602 Enterprise Road - Orange City, FL 32763, 1-800-786-8787 or 386-775-8878 To Learn More about Gabrielle visit at: http://www.GabrielleLaVerde.com
For Concert Details Contact Lloyd Marcus, 954-934-9588 or 386-748-7631
FOR INTERVIEW Contact Family Spokesperson: Gisele Veilleux 386-532-5237 / 407-256-5960 or GiseleVeilleux@earthlink.net
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Who is Gabrielle LaVerde?
Gabrielle LaVerde is a delightful and adored 7 year old little girl who has been diagnosed with a fatal and rare disease, called Niemann-Pick Type C. The disease is considered an orphan disease since there have only been 500 known cases worldwide. The disease itself renders its victims with Alzheimer’s-like symptoms—victims move backward in time and forget how to perform basic functions, such as talking, walking, eating, chewing, swallowing, and breathing.
We first learned of Gabrielle’s diagnosis in October, 2007. Gabrielle’s elementary school classmates were horrified to learn that her disease was fatal, and that there was no cure, no miracle drug, or no surgery that could save her. Her classmates quickly rallied support, not only from their parents, but from the entire Deltona community to help pay for experimental treatments. The outpouring amount of encouragement, support, and prayers that the LaVerde family has received has been phenomenal. The elementary school students raised over $10,800 in less than 3 months.
The purpose of this website is to:
· Increase awareness of the disease known as Niemann-Pick Type C · Create awareness about Gabrielle LaVerde’s condition · Share with supporters recent and upcoming events to help Gabrielle. · Special Thanks to Lloyd Marcus, Deltona Lakes Elementary School, the City of Deltona, and the citizens of Deltona, for your ongoing support.
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CALLING ALL SINGERS! EMERGENCY!!!
We all remember “We Are The World”the historical event in which the music community united to record a song for African Relief. Deltona Arts Recording Studios is asking the Central Florida music community to unite to record “Save Gabi”,a song which will be used to raise funds for medical treatments for a fatally ill seven year old girl. Gabrielle LaVerde suffers with a rare disease called Niemann-Pick Type C (Early Childhood Alzheimer's). Life expectancy after diagnosis is 6-10years.
SINGERS,YOU DO NOT WANT TO MISS THE EMOTIONAL REWARDS OF PARTICIPATING IN THIS UNIQUE, POWERFUL, SPECIAL RECORDING SESSION & OUT POURING OF LOVE!
Recording Session for GABI is THURSDAY, OCTOBER 9th. Time:7pm Place: Deltona Recording Studios Deltona Arts & Historical Center 682Deltona, Blvd, / Deltona, FL 32725 For Info: Lloyd Marcus 954-934-9588 / 407-430-8896 Learn more: www.GabrielleLaverde.com PHOTO:Gabi with Davey Gibbs Photo Courtesy Gisele Veilleux “Save Gabi” was written by Lloyd Marcus & Scott Evans. Produced by Frank Starchak & Adrian Sutton. Lead vocals by Lloyd Marcus. |
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Race car driver and Bench Press World Record holder Davey Gibbs is committed to raising funds to save the life of seven year old Gabrielle Laverde. Gabrielle suffers with a rare fatal disease called Niemann-Pick Type C (Early Childhood Alzheimer's). Life expectancy after diagnosis is 6-10 years.
Power Lift for Gabi & Savin' Gabi Race
Power Lift for Gabi: Davey Gibbs will attempt an AMAZING FEAT of bench pressing 1000lbs for Gabi. Sponsors pledge to donate $3-$10 per pound to Gabi's medical treatments for every pound Davey lifts. Community organizations and businesses are encouraged to sponsor Davey's lift for Gabi; 50 cents, a dollar or whatever you can afford per pound helps and is greatly appreciated.
Savin' Gabi Race: The Savin' Gabi Race in which the winning purse goes to Gabi will follow immediately after Davey's Bench Press Exhibition.
Special Feature: Deltona Arts Recording Studios will debut their song “Savin' Gabi” performed LIVE by 40 members of the Central Florida music community. “Savin' Gabi” was written by Lloyd Marcus & Scott Evans. Produced by Frank Starchak & Adrian Sutton. Lead vocals by Lloyd Marcus. |
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