School Kids Rally to Save Gabrielle LaVerde

Volusia County Elementary School Students line up every morning with their jars, loose change, piggy banks, checks, and allowances to save Gabrielle LaVerde.

School staff counts the donations, and submits a check directly to Gabrielle’s Trust Account for medical expenses.

See DLE’s Big Give for more information and how these kids collected over $10,500.

This rare and deadly disease that attacks young children between the ages of 6—10 years of age. There is no known cure for Niemann-Pick Type C, and once diagnosed, children die within a very short time. Diagnosis of Niemann-Pick itself, in some cases, takes years, as was the case for little Gabrielle LaVerde. Here is a list of certain key search words used when trying to identify this rare and deadly disease that attacks young children between the ages of 6—10 years of age. Niemann-Pick Disorder, Niemann-Pick Disease, Niemann-Pick Type C, Neimann-Pick Disorder, Neimann-Pick Disease, Neimann-Pick Type C, NP-C, Gabrielle LaVerde, Niemann-Pick is also known as childhood Alzheimer’s disease. Gabrielle’s Gift, cholesterol, metabolism, genetic, metabolic, lipids, neurological, life expectancy, speech, gait, developmental, delay, cerebral palsy, occupational therapy, behavioral, neurologist, pediatrician, geneticist, EEG, MRI, CT scan, seizure, medication, Orlando, Florida, Neuro Muscularist, Kennedy-Krieger, Johns Hopkins, Movement, Disorder, Neurology, Baltimore, Degenerative, Disease, Brandon, skin biopsy, stem cell, stem cell research, regenerative medicine, cytotherapy, amniotic stem cell, fatal, terminal, Ara Parseghian, Addi Hempel, Cassi Hempel, Dana’s Angel Research Trust, Jessica Leoni, Kevin Eadie, Jacob DeMeis-Dullea, Luke Liegghio, Race for Adam, Ty Quandt, Early Childhood Alzheimer’s

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Young Boy Tries to Save Little Gabrielle

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Elementary School Unites to Fight Niemann-Pick Type C

Save Gabrielle LaVerde

From Niemann-Pick Type C

Some men see things and ask why, some men see things, and ask why not.

What do we Need?

The kids at DLE have shown us that a Big Give needs to be creative! Some have donated their frequent flyer miles, hotel points, you name it! Anything to help Gabrielle get the treatment she needs.

We are hoping that we can find a Printing company to help us print flyers, a T-shirt company to make t-shirts for our supporters and volunteers to help spread the world, and a company that will make simple bumper stickers for our community.

We also need more photos or video of the fund raising evening so we can include them in videos and on this webpage of that spectacular evening! Please email GiseleVeilleux@earthlink.net if you have any photos you’d like to share.